PEP Talks
Welcome to PEP Talks, the Patient Engagement Podcast brought to you by the Alberta Strategy for Patient-Oriented Research SUPPORT UNIT (AbSPORU) Patient Engagement Team.
Join us for insightful conversations featuring a diverse array of voices, including patient, family, and community research partners, academic researchers, healthcare providers, policy-makers, and other key collaborators on the topic of partnerships in patient-oriented research and patient engagement in health research and health care! Together, we explore innovative ideas, share experiences, and highlight the importance of collaboration in advancing the science and practice of patient engagement in health research.
PEP Talks
Newfoundland and Labrador SPOR SUPPORT Unit with Mike Warren and Holly Etchegary (EP 24)
In episode 24 of PEP Talks, we talk about the Newfoundland and Labrador SPOR SUPPORT Unit and how it works to improve the lives of patients by empowering them to support research that is important to them as patient research partners. Their lived experiences and personal healthcare journeys bring important perspectives to the table that help identify research priorities. Today, we speak with Mike Warren: a patient and family partner for the NL SUPPORT Unit, and Holly Etchegary: the patient engagement academic lead for the NL SUPPORT Unit and a health services researcher at the Memorial University of Newfoundland. In this episode, we will be discussing how the NL SUPPORT Unit Patient Advisory Council (PAC) came about, how a PAC can work, the importance of patient engagement, successes, challenges, the lessons learned, advice, and the future of patient engagement in Canada.